1. In Pembrokeshire the 26 week waiting time target is still just a dream for many families and those lucky enough to get their 1st appointment face a long wait for their 2nd an 3rd appointment due to fact the health departments are concentrating on 1st appointment only to get their lists down.
The only transformation of the educational support i'v see happening is within the early years setting. Support for secondary and post 16 education is failing, their is no support without a key worker.
Problem is the people that are high functioning autism do not the criteria box for support form the social services, we are also desperately lacking key workers in Pembrokeshire.
The “Can you see me” scheme is working well in offering autism awareness in local towns and villages but I do strongly believe that ASD info Wales needs to work more closely with the national autistic society cymru to more effectively hand out autism awareness training. The way the autism awareness certificates are archived is poor through the online ASD info Wales website. It should take weeks/months of training before offering a certificate for autism awareness not a 10 minute questionnaire online. This triggers many alarms bells in my head as people are flashing these certificates as proof from the Welsh government and health boards that they are autism aware when in reality most are not. This is dangerous as people with autism maybe miss led.
2. Yes
2a Yes
2b Yes
3 Yes
4. Yes
4a Every year
5. The Welsh government could ask the national autistic society cymru for feed back from their very very large community. The Wel The Welsh government could ask the national autistic society cymru for feed back from their very very large community. The Welsh government needs to be aware of what people actually need and not fall victim to it's own lack of awareness.sh government needs to be aware of what people actually need and not fall victim to it's own lack of awareness.
6. Assess what part of the service is failing and address the problem directly. Most issue's are due to lack of staff and funding.
7. Diagnosis for autism here in Pembrokeshire is a heart wrenching waiting game and it's not a nice game to be forced to play. It took my son just over 3 years to get his diagnosis of autism and he was classed as an easy child to diagnose, I know mothers who had to wait 5-6 years. This is totally unacceptable
8. The most difficult thing about diagnosis apart from being left on a waiting list for years is the lack of support and information offered by the local authorities and health boards. If it wasn't for the national autistic society Pembrokeshire branch i probably would of moved to England or ending up in a mental health hospital myself.
9. .Yes
10. No
11. Yes
12. Yes
13. Yes
14.
15.
16a Yes
16b
17.
18. . a. On the Bill.
19.
20.
21. No
22.
23. I would like the Welsh government local authorities and health board to fund some of the therapies they suggest during the diagnosis reports. I wad told my son would benefit from ABA therapy but this isn't funded by our NHS and would cost me £2500 to go though skybound therapies. Sadly in order for my son to again access to this therapy I would have to start a go fund me page which in affect is degrading because it's begging, we shouldn't have to beg.
There is a whole list of therapies that are suggested by the health board but not funded from music and dance therapy to trampoline therapy none are founded none not one.